This provisional framework provides a practical and transparent method for deriving grades of recommendation for public health interventions, based on a synthesis of all relevant supporting evidence from research.
Monitoring equity and research policy
Grading evidence and recommendations for public health interventions
Report by the Health Development Agency, London
Greater local ownership of HIV research needed in Africa
Plus News: 9 December 2011
Unless African governments increase their funding for and engagement in HIV research, the continent cannot hope to attain equal status in determining its research agenda and priorities, speakers said at the 16th International Conference on AIDS and Sexually Transmitted Infections (STIs) in Africa, held in December 2011 in Ethiopia. Most African health research is driven by external funders, which often means that research starts and ends on the say-so of the funders, rather than being based on a country's needs. Prof Nelson Sewankambo, principal of the College of Health Sciences at Uganda's Makerere University, said heavy external funder involvement in local research can actually harm existing national institutions, which may lose strategic direction and become retarded by the loss of key staff to research projects and distortion of institutional structures and governance. He argued that inequities in collaboration can lead to lack of transparency in the decision-making process, as well as disputes over publication rights, ownership of data, specimens and equipment. Other speakers also noted that inadequate community engagement was common when partnerships were skewed in favour of funders’ priorities and ethical violations occurred in research projects, such as the use of placebos in studies on mother-to-child HIV transmission. They called for new, more equitable partnership models and expansion of local capacity to sustain research activities once externally funded projects ended.
Guidance for reconciling patent rights and disclosure of findings at scientific meetings
Lipkus NB, Mackie JE and Singer PA: Health Research Policy and Systems 8(15), 25 May 2010
Open collaboration and sharing of information among scientists at scientific meetings can foster innovation and discovery. However, such sharing can be at odds with potential patenting and commercialisation objectives. This tension may be mitigated if certain procedures are followed in the context of scientific meetings. The article first discusses what makes a scientific finding patentable and then sets out four specific patent issues for scientists to consider before attending a scientific meeting and sharing their research. Finally, it provides recommendations on how scientists can best protect their intellectual property rights while sharing information at scientific meetings.
Handbook on health inequality monitoring: with a special focus on low- and middle-income countries
WHO: 2013
The World Health Organization developed the Handbook on health inequality monitoring: with a special focus on low- and middle-income countries to provide an overview for health inequality monitoring within low- and middle-income countries, and act as a resource for those involved in spearheading, improving or sustaining monitoring systems. The aim of this handbook is to serve as a comprehensive resource to clarify the concepts associated with health inequality monitoring, illustrate the process
through examples and promote the integration of health inequality monitoring within health information systems of low- and middle-income countries.
Handbook on Health Inequality Monitoring: with a special focus on low- and middle-income countries
World Health Organization, Geneva, 2013.
The Handbook on health inequality monitoring: with a special focus on low- and middle-income countries is a user-friendly resource, developed to help countries establish and strengthen health inequality monitoring practices. The handbook elaborates on the steps of health inequality monitoring, including selecting relevant health indicators and equity stratifiers, obtaining data, analysing data, reporting results and implementing changes. Throughout the handbook, examples from low- and middle-income countries are presented to illustrate how concepts are relevant and applied in real-world situations; informative text boxes provide the context to better understand the complexities of the subject. The final section of the handbook presents an expanded example of national-level health inequality monitoring of reproductive, maternal and child health.
Harnessing the power of the grassroots to conduct public health research in sub-Saharan Africa: a case study from western Kenya in the adaptation of community-based participatory research (CBPR) approaches
Kamanda A, Embleton L, Ayuku D, Atwoli L, Gisore P, Ayaya S et al: BMC Public Health 13(91), 31 January 2013
The Orphaned and Separated Children's Assessments Related to their Health and Well-Being (OSCAR) project is a longitudinal cohort of orphaned and non-orphaned children in Kenya. To date the study has enrolled 3,130 orphaned and separated children. In this paper, the authors use this project to describe how community-based participatory research (CBPR) approaches and principles can be incorporated and adapted into study design and methods. Preliminary results suggest that community engagement and participation was integral in refining the study design and identifying research questions that were impacting the community. Through the participation of village chiefs and elders, researchers were able to successfully identify eligible households and randomise the selection of participants. The on-going contribution of the community in the research process was also vital to participant retention and data validation while ensuring cultural and community relevance and equity in the research agenda. In conclusion, the authors argue that CBPR methods can strengthen epidemiological and public health research in sub-Saharan Africa within the social, political, economic and cultural contexts of the diverse communities on the continent, provided that the methods are adapted to the local context.
Health and demographic surveillance systems: A step towards full civil registration and vital statistics systems in sub-Sahara Africa?
Ye Y, Wamukoya M, Ezeh A, Emina J and Sankoh O: BMC Public Health 12(741), 5 September 2012
Although most countries in sub-Saharan Africa lack an effective and comprehensive national civil registration and vital statistics system (CRVS), in the past decades the number of Health and Demographic Surveillance Systems (HDSSs) has increased throughout the region. The authors of this paper argue that, in the absence of an adequate national CRVS, HDSSs should be more effectively utilised to generate relevant public health data, and also to create local capacity for longitudinal data collection and management systems. If HDSSs get strategically located to cover different geographical regions in a country, data from these sites could be used to provide a more complete national picture of the health of the population. Strategic planning is needed at national levels to geographically locate HDSS sites and to support these through national funding mechanisms. The authors emphasise that HDSSs should not be seen as a replacement for civil registration systems. Rather, they should serve as a short- to medium-term measure to provide data for health and population planning at regional levels with possible extrapolation to national levels. HDSSs can also provide useful lessons for countries that intend to set up nationally representative sample vital registration systems in the long term.
Health Disparities And Health Equity: Concepts and Measurement
Annual Review of Public Health
There is little consensus about the meaning of the terms "health disparities," "health inequalities," or "health equity." The definitions can have important practical consequences, determining the measurements that are monitored by governments and international agencies and the activities given resource-support to address health disparities/inequalities or health equity. This paper aims to clarify the concepts of health disparities/inequalities and health equity, focusing on the implications of different definitions for measurement and hence for accountability.
Health equity monitoring is essential in public health: lessons from Mozambique
Llop-Gironés A; Cash-Gibson L; Chicumbe S; Alvarez F; et al: Globalization and Health 15(67) 1-7, 2019
This paper presents an evaluation of the current capacity of the national health information systems in Mozambique, and the available indicators to monitor health inequalities, in line with Sustainable Development Goals 3. A data source mapping of the health information system in Mozambique was conducted. Eight data sources contain health information to measure and monitor progress towards health equity in line with the 27 Sustainable Development Goal 3 indicators. Seven indicators bear information with nationally funded data sources, ten with data sources externally funded, and ten indicators either lack information or it does not applicable for the matter of the study. None of the 27 indicators associated with Sustainable Development Goal 3 can be fully disaggregated by equity stratifiers; they either lack some information or do not have information at all. The indicators that contain more information are related to maternal and child health. The authors report that there are important information gaps in Mozambique’s current national health information system which prevents it from being able to comprehensively measure and monitor health equity.
Health in South Africa: changes and challenges since 2009
Mayosi BM, Lawn JE, van Niekerk A, Bradshaw D, Karim SSA, Coovadia HM: The Lancet 380(9858): 2029-2043, 8 December 2012
According to this evaluation, South Africa has improved most of its health indicators since 2009, significantly expanded its programme of antiretroviral therapy and launched an ambitious government policy to address lifestyle risks, as well as an integrated strategic framework for prevention of injury and violence, which remains to be implemented. A radical system of national health insurance and re-engineering of primary health care will be phased in over 14 years to enable universal, equitable and affordable health-care coverage. National consensus has been reached about seven priorities for health research with a commitment to increase the health research budget to 2% of national health spending. However, large racial differentials still exist in the social determinants of health, Integration of services for HIV, tuberculosis and non-communicable diseases needs to improve, as do surveillance and information systems. Additionally, successful interventions need to be delivered more widely. The authors conclude that transformation of the health system into a national institution that is based on equity and merit and is built on an effective human-resources system could still place South Africa on track to achieve the health-related Millennium Development Goals 4, 5 and 6.